Well, today turned out to be quite traumatic and we still don't know what's going on! Amelia has had a fever (101-103) on and off since Saturday. We took her to the doctor today. Nothing in her ears, lungs sound fine...sent her to the hospital for a bood workup and a cathater for a urine sample. It took two heel pricks to get the blood, but then she wouldn't stop bleeding while they tried to get the urine sample. Note that I said TRIED. Three different nurses failed to get it in, including a pediatric nurse they called down. It was the worst torture I have ever seen her put through, including when she was intubated. Then back to the pedi office where they gave her an antibiotic shot and gave me a bag to try to catch pee in (wish me luck on that one; we haven't been practicing "early elimination communication" or whatever it's called!).
Then the doctor decides that he'll finally get proactive about moving forward on the helmet thing. Only he's never handled it before and they keep making referrals to the wrong places! The PT therapist from ECI has been trying to get information for me, but I've been too overwhelmed to really process and remember enough of it to move forward (besides, I have a phone phobia that has been flairing up terribly lately...it was quite a breakthrough for me to make Amelia's appt. today). Anyway, we have to go back tomorrow and hopefully we'll get it all worked out.
I was right at the breaking point, going through paperwork that's all thrown in a box, and couldn't remember which ECI person was which and who was helping me with the helmet info...and then I prayed for help. My cell phone rang (and I heard it, which is unusual!). It was the SP, calling to confirm her visit tomorrow. That was one of the calls I had to make (to cancel). I was able to talk to her and figure out that it was the PT I was thinking of and got the phone number from her. Now I still have to call the PT, or at least give the number to the pedi office...but that was such a blessing. Anyway, I'm rambling...it's been a LONG day, Amelia and I haven't been sleeping well, I hurt my back, and we still don't know what's wrong with her...oh, but I did see (while holding her down for the torturers) a slit where her first tooth is coming in!